Alagille Syndrome Alliance
www.alagille.org/
P. O. Box 22
Collierville,
TN
38027
US
901-286-8869
- Member Directory
- Job Postings
- Member Community
- Education
- Multiple Member Levels
About This Association
The Alagille Syndrome Alliance is an international nonprofit started in 1993, representing the ALGS community and based in the US. This organization is comprised of 1 staff members and 5 board members, working remotely. The Board of Directors of the Alagille Syndrome Alliance locations span internationally allowing for more global outreach, a top priority for the ALGSA. Together, we continue the work of the organization with the sole purpose of making living a life with Alagille Syndrome easier. The Alagille Syndrome Alliance staff and board includes ALGS patients and family members, all deeply understanding of the complex and difficult nature of ALGS and circumstances resulting from such difficulty.
Publications
ALGSA eNew
Conventions
Annual Gala, International Symposium
Specialties:
- Disabilities - Physical
Information Summary
Member Count
500Year Founded
1993Staff Count
1Budget
$50,000 – $99,000Category
Disabilities - PhysicalType
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